Caregiver Links

Child Welfare

  • Community Based Care
    • Community Based Care contracts with local non-profit agencies to provide child welfare services for children that have been abused, neglected or abandoned.
  • Northwest Florida
    • Lakeview Center Families First Network – Pensacola
      • www.bhcpns.org
    • Big Bend Community Based Care – Tallahassee
      • www.bigbendcbc.org
  • Northeast Florida
    • Partnership for Strong Families – Gainesville
      • www.pfsf.org
    • Family Support Services of North Florida – Jacksonville
      • www.fssnf.org
    • Community Partnership for Children – Daytona Beach
      • www.cbcvf.org
    • St. Johns County Board of County Commissioners – St. Augustine
      • www.sjcfl.us
    • Clay & Baker Kids Net
      • www.ccbhc.org
  • Suncoast
    • Sarasota Family YMCA – Sarasota
      • www.sarasota-ymca.org
    • Hillsborough Kids – Tampa
      • www.hillsboroughkids.org
    • Children’s Network of SW Florida – Fort Myers
      • www.childnetswfl.org
  • Central Florida
    • Community Based Care of Seminole – Sanford
      • www.cbcseminole.org
    • Community Based Care of Brevard – Melbourne
      • www.cbcbrevard.org
    • Family Services of Metro-Orlando – Orlando
      • www.fsmetroorlando.org
    • Kids Central – Ocala
      • www.kidscentralinc.org
    • Heartland For Children – Bartow
      • www.heartlandforchildren.org
    • United For Families – Port St. Lucie
      • www.uff.us
    • Child and Family Connections – West Palm Beach
      • www.cfcpbc.org
    • ChildNet Inc. – Plantation
      • www.childnet.us
  • Southern Florida
    • Our Kids of Miami/Dade/Monroe Inc. – Miami
      • www.ourkids.us
    • Children’s Home Society
      • http://www.chsfl.org
      • CHS is one of Florida’s oldest non-profit organizations providing services to children and families. Established in 1902 as a Jacksonville orphanage, CHS has expanded its mission as a statewide multi-service agency. It provides Florida families with a unique spectrum of social services, including foster care, adoption, child abuse prevention, emergency shelters, group homes, case management, and treatment for developmentally disabled children.

Disability Claims

  • http://www.Disability-Claims.net
  • Disability-Claims.net assists people with financial support and advice regarding Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) claims.

Florida 2-1-1 Network

  • http://www.flairs.org/florida211networkplan.htm
  • Caregivers can call 2-1-1 throughout the state for information on social services, referrals for respite or to report abuse. The Florida Alliance for Information and Referral Services network is a collaboration between regional and local call centers that nearly half of Florida’s 67 counties.

Alzheimer’s/Memory Disorders

  • Alzheimer’s Association
    • http://www.alz.org
    • The Alzheimer’s Association, a national network of chapters, is the largest national voluntary health organization dedicated to advancing Alzheimer’s research and helping those affected by the disease. The Association also provides education and support for families, caregivers and people diagnosed with the condition.

All Disabilities

  • Advocacy Center
    • http://www.advocacycenter.org
    • The Advocacy Center for Persons with Disabilities, Inc., is a non-profit organization providing protection and advocacy services in the State of Florida. Their mission is to advance the dignity, equality, self-determination and expressed choices of individuals with disabilities.
  • American Diabetes Association
    • http://www.diabetes.org
    • The American Diabetes Association is a non-profit health organization providing diabetes research, information and advocacy. The mission of the organization is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. To fulfill this mission, the American Diabetes Association funds research, publishes scientific findings, provides information and other services to people with diabetes, their families, health care professionals and the public.
  • ARC/Florida
    • http://www.arcflorida.org
    • Formerly known as the Association for Retarded Citizens, ARC promotes opportunities for people with mental retardation and developmental disabilities to realize their goals of where and how they learn, live, work and access leisure activities, ARC/Florida is also committed to reducing the incidence and limiting the consequences of mental retardation and other developmental disabilities through education, awareness, research, advocacy and the support of families, friends and community.
  • ARCH – National Respite Network and Resource Center
    • http://www.archrespite.org
    • The ARCH National Respite Network includes a National Respite Locator Service to help caregivers and professionals locate respite services in their community. It also advocates for preserving and promoting respite in policy and programs at the national, state and local levels.
  • CARD – Center for Autism and Related Disabilities
    • http://card-usf.fmhi.usf.edu
    • Florida is home to many individuals with autism and related disabilities. In response to the needs of these people and their families, six regional, nonresidential resource centers have been established at the University of Central Florida, the University of Florida/Gainesville, the University of Florida Health Science Center/Jacksonville, the University of South Florida, the University of Miami and Florida State University. The University of Central Florida Center for Autism and Related Disabilities provides services within the geographical region which includes Orange, Lake, Osceola, Sumter, Brevard, Volusia, and Seminole Counties.

Caregiver Magazine

  • http://www.caregiver.com
  • Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, Today’s Caregiver Magazine, was the first national magazine dedicated to caregivers. The magazine sponsors “Sharing Wisdom Caregivers Conferences”, and a web site, which includes newsletters, online discussions, back issue articles of Today’s Caregiver Magazine, chat rooms and an online store.

Caregivers Directory

  • http://www.caregiversdirectory.com
  • The Caregivers Directory provides access to resources for caregivers in any setting. It also supplies articles and information for prospective caregivers and those who find themselves in an advisory capacity to friends or family. The information gives resources to make decisions, find outside help and utilize government and community support.

Children With Diabetes

  • http://www.childrenwithdiabetes.com
  • The mission of Children With Diabetes.com is to promote understanding of the care and treatment of diabetes in children; to increase awareness of the need for unrestricted diabetes care for children at school and daycare, to support families living with diabetes and promote understanding of research for a cure.

The Children’s Forum

  • http://www.flchild.com
  • The Florida Children’s Forum promotes quality child care, early education, and work/family solutions throughout the state. Headquartered in Tallahassee, the Forum serves as the hub for the Child Care Resource and Referral Network; a network of 25 child care resource and referral agencies across the state.

Children’s Medical Services

  • http://www.cms-kids.com
  • Children’s Medical Services, run through the Florida Department of Health, provides children with special health care needs with a family centered, managed system of care. Children with special health care needs are those under age 21 whose serious or chronic physical or developmental conditions require extensive preventive and maintenance care beyond that required by typically healthy children.

Department of Children and Families

  • http://www.state.fl.us/cf_web/
  • The Department of Children and Families works in partnership with local communities to offer an array of services to ensure the safety, well-being and self-sufficiency of children and families throughout the state.

Disability Network Inc.

  • http://www.disabilitynetwork.com
  • The Disability Network is an information highway for the disabled and their families. The web site offers articles, support information and entertaining links for adults and children.

Disability Resources

  • http://www.disabilityresources.org
  • Disability Resources is a non-profit organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently.

Easter Seals

  • http://www.easter-seals.org
  • Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 85 years. From child development centers to physical rehabilitation and job training for people with disabilities, Easter Seals offers a variety of services to help people with disabilities address life’s challenges and achieve personal goals.

Exceptional Parent

  • http://www.eparent.com
  • EP’s on-line resource offers information, support, ideas, encouragement and outreach for parents and families of children with disabilities and the professionals who work with them.

The Family Cafe

  • http://www.familycafe.net
  • Family Cafe sponsors a statewide conference for individuals with special needs and their families. The non-profit organization also serves as a forum for collaboration, advocacy, friendship and empowerment.

Family Care Council

  • http://fccflorida.org/
  • The mission of the Family Care Council is to advocate, educate and empower individuals with developmental disabilities and their families. There are 15 volunteer Family Care Councils in the state that give advocates and persons with disabilities a voice in the policies and decisions affecting their lives. FCC’s purpose is to advise the Agency for Persons with Disabilities.

Family Caregiver Alliance

  • http://www.caregiver.org
  • Family Caregiver Alliance is a support organization for caregivers. The web site includes on Alzheimer’s disease, stroke, traumatic brain injury, Parkinson’s disease, ALS and other disorders and long-term care concerns. FCA is a public voice for caregivers offering assistance and advice through education, services, research and advocacy.

Family Network on Disabilities

  • http://www.fndfl.org
  • Family Network on Disabilities of Florida, Inc. is a statewide alliance of individuals with disabilities, special needs, or at-risk and their families. Their mission is to provide family-driven support, education, information, and advocacy.

Family Voices

  • http://www.familyvoices.org
  • Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs. The organization stays on top of public and private sector health care changes that affect our children and families throughout the nation.

FloridaChildCareSearch

  • http://www.floridachildcaresearch.com
  • This site has been created for parents and guardians looking for childcare providers in their area that will best suit their and their children’s needs and requirements. The profiles provide answers to the most common questions parents may ask and contact information is included for parents with additional questions.

Joni and Friends International Disability Center

  • http://www.joniandfriends.org
  • Joni and Friends’ goal is the advancement of Christian ministry within the disability community, matching the resources of local churches with the needs of people with disabilities. The organization provides a broad range of materials and outreach and training programs to equip Christians to meet the needs of the disability community across the United States and around the world.

Florida Spinal Cord Injury

  • http://www.fscirc.org
  • FSCIRC is a statewide clearinghouse of spinal cord injury resource information. Their purpose is to increase knowledge, help prevent secondary medical complications and foster independence.

Florida’s Voice on Mental Retardation

  • http://www.FVMR.org
  • FVMR offers family members and friends support services and research materials, while also advocating on behalf of persons with mental retardation, particularly those whose conditions are so severe that they cannot speak for themselves.

Homes and Communities – People with Disabilities

  • http://www.hud.gov/groups/disabilities.cfm
  • The site, run by the U.S. Department of Housing and Urban Development, provides Fair Housing rights information to people with disabilities on how to rent or buy or home or make their home accessible.

National Alliance for Caregiving

  • http://www.caregiving.org
  • The National Alliance for Caregiving is a non-profit coalition of national organizations focusing on issues of family caregiving. The Alliance was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues.

National Association of Area Agencies on Aging

  • http://www.n4a.org
  • N4A’s primary mission is to build the capacity of its members to help older persons and persons with disabilities live with dignity and choices and remain in their homes as long as possible. The Washington D.C. organization coordinates and supports home and community based services, including information and referral, home-delivered and congregate meals, transportation, employment services, senior centers, adult day care and long-term care ombudsman.

National Council on Disabilities

  • http://www.ncd.gov
  • The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families.

National Down Syndrome Society

  • http://www.ndss.org
  • The National Down Syndrome Society was established in 1979 to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. The goal of NDSS is to increase public awareness about Down syndrome and discover its underlying causes through research, education and advocacy.

National Family Caregivers Association

  • http://www.nfcacares.org
  • The National Family Caregivers Association (NFCA) exists to support family caregivers and to speak out publicly for caregivers’ needs. Their mission is to educate, support, empower and speaks for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.

National Dissemination Center for Children with Disabilities

  • http://www.nichcy.org
  • The national information center provides information on disabilities and disability-related issues. The focus is children and youth from birth to age 22. The site includes information on specific disabilities, early intervention, special education and research on effective educational practices.

National Institute of Neurological Disorders and Strokes (NINDS)

  • http://www.ninds.nih.gov
  • The mission of NINDS is to reduce the burden of neurological disease—a burden borne by every age group, by every segment of society, by people all over the world. The site provides information on neurological disorders, educational training and research.

National Kidney Foundation

  • http://www.kidneyfla.org
  • The mission of the National Kidney Foundation of Florida is to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. The National Kidney Foundation of Florida is a vital resource for kidney patients and their families – helping them learn how to cope with the physical and psychological aspects of the disease and providing them with hope for the future.

National Multiple Sclerosis Society

  • http://www.nmss.org
  • The goal of the National Multiple Sclerosis Society is to end the devastating effects of MS. The society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs—including support for the newly diagnosed and those living with MS over time.

National Organization for Rare Disorders Inc. (NORD)

  • http://www.rarediseases.org
  • The National Organization for Rare Disorders (NORD) is a federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

The National Parkinson Foundation Inc.

  • http://www.parkinson.org
  • The National Parkinson Foundation’s mission is to find the cause and cure for Parkinson’s disease and related neurodegenerative disorders through research. It also educates the public to improve the quality of life for both patients and their caregivers.

National Spinal Cord Injury Association

  • http://www.spinalcord.org
  • NSCIA educates and empowers survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. Education programs include injury prevention, improvements in medical, rehabilitative and supportive services, research and public policy formulation.

Ounce of Prevention

  • http://www.ounce.org
  • The Ounce of Prevention Fund of Florida is a nonprofit, research and development organization whose mission is to identify, fund and evaluate innovative health, education and social services programs for children and families, with an emphasis on prevention and early intervention services.

Parents Planning Programs

  • http://www.pppflorida.org
  • Parents Planning Programs is a web site for parents, families and friends of people with developmental disabilities. PPP is dedicated to providing a quality lifestyle for the special needs population in Florida.

Prader-Willi Syndrome Association (USA)

  • http://www.pwsausa.org/
  • Prader-Willi Syndrome Association (USA) provides information, education and support services to individuals affected by Prader-Willi Syndrome.

Spina Bifida Association of America

  • http://www.sbaa.org
  • The Spina Bifida Association of America was formed in 1973 to promote the prevention of Spina Bifida and to enhance the lives of all affected. It provides education, advocacy, research and service to Spina Bifida community.

Toni Jennings Exceptional Education Institute

  • http://academy.ucf.edu/tjeei_about.htm
  • The mission of the Toni Jennings Exceptional Education Institute is to facilitate the development of knowledge and skills necessary to provide educational and clinical services for children and adults with exceptional needs and their families through research, practice and partnerships. The institute provides access to and instruction in assistive technology for individuals with disabilities.

UCP of Central Florida

  • http://www.ucpcdc.org
  • UCP provides a support, education and therapy for more than 2,300 children up to age 21 in their homes as well at six locations throughout Central Florida: Downtown Orlando, Lake Mary, East Orange, West Orange, Pine Hills, and Kissimmee.

Youth with Disabilities in Transition to Adulthood

  • http://www.ssa.gov/work
  • This Social Security web site publishes rules for the Ticket to Work and Self-Sufficiency programs. Qualified disability beneficiaries will be issued tickets they can use to access vocational rehabilitation services, employment services and other support services from approved providers. SSA will pay the service providers if the beneficiaries achieve certain outcomes.

Chronic/Terminally Ill

  • Camp Boggy Creek
    • http://www.boggycreek.org
    • Camp Boggy Creek in Eustis, Florida sits on 232 acres north of Orlando. It is a permanent, year-round center for young people with chronic and life-threatening illnesses. Boggy Creek provides a safe and exciting experience for children with more than 13 different diseases including cancer, heart disease, sickle cell anemia and spina bifida, as well as for children requiring ventilator assistance. Weekend programs, offered in non-summer months, provide a respite time for families to focus on fun instead of illness.

Elders

  • AARP
    • http://www.aarp.org
    • AARP is a nonprofit membership organization for people age 50 and older in the United States. It delivers information and advocacy to the more than 35 million members.
  • Children of Aging Parents
    • http://www.caps4caregivers.org
    • Children of Aging Parents is a nonprofit, charitable organization whose mission is to assist the nation’s nearly 54 million caregivers of the elderly or chronically ill with reliable information, referrals and support, and to heighten public awareness that the health of the family caregivers is essential to ensure quality care of the nation’s growing elderly population.
  • Department of Elder Affairs
    • http://elderaffairs.state.fl.us/
    • The mission of the Department of Elder Affairs is to create an environment that provides choices, promotes independence and enables older Floridians to remain in their communities for a lifetime. The department began operation in January 1992 with the legislative responsibility of being the primary agency for administering human service programs for the elderly and developing policy recommendations for long-term care.
  • ElderCare Online Caregivers Support Network
    • http://www.ec-online.net
    • ElderCare Online is an online community that provides information, education and support to families caring for aging loved ones, especially those coping with Alzheimer’s Disease and related dementias.
  • Florida Kinship Center
    • http://www.FLkin.org
    • The Florida Kinship Center is in the School of Social Work at the University of South Florida in Tampa. It is dedicated to serving grandparents and other relatives raising children in the State of Florida. The center helps support kinship caregivers, children and the entire kinship family through innovative programs, services and partnerships.
  • National Institute on Aging
    • http://www.nia.nih.gov
    • The National Institute on Aging (NIA) leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. In 1974, Congress granted authority to form the National Institute on Aging to provide leadership in aging research, training, health information dissemination and other programs relevant to aging and older people. Subsequent amendments to this legislation designated the NIA as the primary federal agency on Alzheimer’s disease research.

Foster Parents

  • Statewide Adoption Helpline
    • http://www.AdoptFlorida.com
    • As a free service, the Adoption Information Center, provides adoption information and referral services to adoptive parents, adult adoptees, birth relatives, pregnant women and professionals. Telephone in Florida 1-800-96-ADOPT out of Florida 1-904-353-0679.
  • Florida State Foster Adoptive Parent Association Inc.
    • http://www.charityadvantage.com/fsfapa/Home.asp
    • The association strengthening foster/adoptive families through support, training and advocacy with the aim of nurturing child safety, well-being and stability while enhancing teamwork and partnership with the entire community.

Hearing/Speech/Language/Visual Impairments

  • American Council of the Blind
    • http://www.acb.org
    • The Council strives to improve the well-being of all blind and visually impaired people by: serving as a representative national organization of blind people; elevating the social, economic and cultural levels of blind people; improving educational and rehabilitation facilities and opportunities; cooperating with the public and private institutions and organizations concerned with blind services; encouraging and assisting all blind persons to develop their abilities and conducting a public education program to promote greater understanding of blindness and the capabilities of blind people.
  • American Foundation for the Blind
    • http://www.afb.org
    • Every seven minutes, someone in America will become blind or visually impaired. Since 1921, the American Foundation for the Blind—to which Helen Keller devoted more than 40 years of her life —has been eliminating barriers that prevent people who are blind or visually impaired from reaching their potential. The American Foundation for the Blind is dedicated to addressing the critical issues of literacy, independent living, employment, and access through technology for the ten million Americans who are blind or visually impaired.
  • Florida School for the Deaf and Blind
    • http://www.fsdb.k12.fl.us
    • The Florida School for the Deaf and the Blind is a state-supported boarding school for eligible hearing-impaired and visually-impaired students pre-school through 12th grade. Founded in 1885, the School awards standard and special diplomas and prepares its graduates for a wide range of professional careers and trades. There is no cost to families for tuition for eligible Florida residents.
  • Florida Division of Blind Services
    • http://www.myflorida.com/dbs/cs/index.shtml
    • The Division of Blind Services is Florida’s state agency responsible for ensuring that people of all ages iwho have visual impairments can live independently and achieve their goals. It’s Bureau of Braille and Talking Book Library administers a free library program of Braille and recorded materials for eligible readers.
  • League for the Hard of Hearing
    • http://www.lhh.org
    • The League for the Hard of Hearing’s mission is to improve the quality of life for infants, children, and adults with all degrees of hearing loss.
  • National Association for Visually Handicapped
    • http://www.navh.org
    • National Association for Visually Handicapped works with millions of people worldwide coping with difficulties of vision impairment.

HIV/AIDS (Affected & Infected)

  • AIDS Healthcare Foundation
    • http://www.aidshealth.org
    • AIDS Healthcare Foundation’s mission is to provide cutting-edge medicine and advocacy, regardless of ability to pay. It works to end the AIDS epidemic through prevention, research and advocacy. The foundation provides the finest medical care assuring that indigent persons infected with HIV have equal access to healthcare.
  • Florida AIDS Action
    • http://www.floridaaidsaction.org
    • Florida AIDS Action is the only statewide nonprofit HIV/AIDS agency in Florida. It provides public policy research and advocacy, community planning, and education.

Mental Illness

  • The Nation’s Voice on Mental Illness
    • http://www.nami.org
    • The National Alliance for the Mentally Ill (NAMI) is a nonprofit, grassroots, self-help, support and advocacy organization of consumers, families, and friends of people with severe mental illnesses, such as schizophrenia, major depression, bipolar disorder, obsessive-compulsive disorder, and anxiety disorders.

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